Great news!
I am b-raf positive! They rang us this morning as soon as they received notification.
This means now that I have a chance of getting onto the new trial drug that has been showing so many positive results.
Next week I will have a whole heap of tests to make sure I am well enough to go onto the trial. I think it's mostly that your heart, liver and brain are functioning within normal limits.
My biggest risk is my heart. They hook me up to a monitor for an amount of time (of which I'll find out more next week) and then check to make sure it's strong enough to take the drug.
I will find out more on Monday so I will fill you in on the details then. At the moment I just have a handful of appointments and a 20 page document I need to sift through and sign before they can put me forward. I can't imagine that there is anything in the release document that I wouldn't be happy to sign? Oh well, let's wait and see!
I was completely spoilt yesterday for my birthday. Jason got me an eternity ring. It was a complete surprise and is absolutely beautiful....just like him! The boys got me a diamond heart pendant that apparently Matt picked out on his own. Before going to a jewellery store he already knew he wanted to get that. I think he will make some woman very happy one day. Thoughtful with great taste, what an awesome combination.
We saw the psychologist today about Matt. She had some good ideas and some resources that we could use so we will see how those go over the next few days. It seems we were pretty much doing the right thing anyway, but there are some stories specifically targetted to young children with a parent with cancer that could be helpful.
You wouldn't believe that the staff at Matt and Andy's kindy, Kindalin West Pennant Hills, put in a whole lot of groceries for a hamper for us. I think it will last us a month! Just so thoughtful again......people never cease to amaze me.
I think that's about it for today....it can't get better than the b-raf news can it!! It was well worth the wait.
Best be off to sleep now, keep my body strong to fight this. I AM going to beat this.
Until next time xxx
NEVER, NEVER, NEVER GIVE UP
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Wonderful news Jude about the b-raf... I cant wait to see you... just remember to keep up that wonderful attitude you have and you WILL beat this sweet girl. Sending you lots of love and big hugs... see you soon
ReplyDeleteLove always
Rosanne xoxoxo
Hi Judy, It's Michelle from Ready Steady Go. I have just recently heard of all that has been going on. Kerry forwarded this to me and cannot believe what has happened since I last saw you, but after reading your updates, you will definitely beat this with your fighting spirit and such love/support of family and friends. If I can help by taking Matt to RSG with Tom and myself, I am more than happy (or in any other way, please just ask). Michelle xx 0410 589 631
ReplyDeleteHello Judy, I lost my 22 year old beautiful daughter 18 months ago to Melanoma. I love your positive attitude and fight - for not only your life but the life of your childrens mummy. My Kelly was a fighter I wish she was still with us every day. Kel at 22 taught me something I want to share with you and that is to live, laugh, cry and love every day. No doubt you are more precious to your children and husband than your weight in gold. I'm going to keep an eye on your journey and pray everyday that you can win this fight. Wishing you and your family all the very best. Sherry Thomas
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