Well the new pump is great!
I woke up this morning and felt the most like a normal person, mostly pain free, that I have felt in months. It was great!!
The better news was, that the pump had actually stopped working during the night so I hadn't even got my full dose. It makes me think how good I will feel tomorrow morning, can't wait! The nurses fixed it up when they got here mid morning but it means that the timing is out now with it needing to be changed at 5:30am! Which I think is probably a bigger issue for them than me, given they have to come here to do it whereas I just have to wait. They will manage it over the next few days though to try and get it back to a more reasonable timing.
They are so wonderful and helpful. I am very lucky when it comes to all that kind of stuff. I always seem to be lucky enough to get the the really sweet helpful nurses. She makes me laugh, I am starting to think she is actually coming to have a nurse and play with Hamish rather than to see me!
The massage was great too! I have to wonder if that also led to the good feeling when I woke this morning. There is a lot to be said for the power of touch and when it comes to healing I think it's integral.
The other thing that has blown me away is people organising fund raising for us. Thank you so much to you. Again we appreciate it more than you can imagine. Every little bit helps Jason the boys and I and the fact that they will be held in different areas with different groups of people just helps to make it inclusive of everyone who wants to be involved.
So for those that are interested, I know of 2 definite events...a trivia night at North Ryde RSL on 9th Oct, and a night at Glenmore Heritage Valley Golf Club Mulgoa not sure on the date yet, but not too far away. I will keep you posted on details as I become aware of them. They should both be fun nights from what I have heard is in store.
I am a bit excited for this weekend, 3 of my best friends from high school are coming to visit and I haven't seen them in YEARS. It's kind of sad that shitty stuff finally brings you back face to face, but great that we have the opportunity to catch up again. Love you guys.
I am ready for a big sleep tonight, Matt had an earache last night so kept Jason and I up for most of the night, so it will be nice to have a decent sleep and with the new medication, if the relief is constant I should sleep soundly. Can't wait!!!
Sleep well
NEVER, NEVER, NEVER GIVE UP. xxxx
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Hey there gorgeous girl... glad things are getting sorted out with the pain stuff.. that was fabulous news to hear... David was here today and told me about the fundraisers... I will be there with bells on and if anyone needs help with anything give me a shout... i am at your command.... Glad you are getting to catch up with your old friends as well... that is terrific...
ReplyDeleteWe will catch up real soon
Love always
Rosanne xoxo
Thanks for keeping us posted Jude, its great reading about how you are travelling in this fight that you are going to win!!!!! You are an inspiration to all of us and we love you heaps. Will come and see you soon. Lots of love ... Chris xxx
ReplyDeleteIt's great to hear you are feeling good today, keep that positive thinking up, you're an inspiration to all of us! Soo...I know you love chocolate, soooo..I'm going to sell chocolate to fundraise for you!! I think it was most appropriate :-) Have also posted on an Aussie Twilight Mums forum (hope you don't mind) but I've said if anyone wants to contribute, then to let you know I sent them ;-) Much love and hugs.... xoxo
ReplyDeleteGlad you had a good massage Jude, we're a little envious down here. John and I are pleased to hear your pump has decided to behave a little better these days.
ReplyDeleteI know you'll keep up the fight and we'll be with you always sister dear. It's just one step at a time and we'll all be there to hold you up and encourage when you need it and even when you think you don't.
Our love always John and Sue xoxoxox